Bryan's symptoms have started worsening again, so after another sleepless night, he asked if I could get him into see Dr. Cope (our family practice doctor) just to see if maybe the medication was out of whack or something. They didn't have any openings for nearly two weeks, EXCEPT for one cancellation that they had this morning. So, Bryan took a half day, and went.
Last year when we went to this doctor, he all but told us that Bryan was going to just have to live with the pain, and that we may never know what was wrong. Whisperings of fibromyalgia even riddled the conversation. Needless to say, I was less than happy with this guy, and wasn't all that excited about going back to him.
Today changed my opinion of him.
Bryan prayed on his way to the doctor that he would know what to say, what symptoms to bring up, etc. As he spoke to the doctor, Bryan said he was genuinely concerned. He wants him to go see a different neurologist and rheumotologist. When he told him we were switching insurance companies at the beginning of the month, Dr. Cope was very excited and even gave us some names of doctors to try and get into. He told Bryan that some of the tests he has gone through would not have definitively proven or disproven some of the diseases he suspects. So, he told us of two more tests he will need to undergo after the first of the year.
We still may never find out what is wrong, but it was such a breath of fresh air to be validated by someone that something is wrong. I've said it before, I don't necessarily expect Bryan to ever get better, but to know what is going on, that would truly be a gift. I feel very peaceful about things (as long as I don't think too hard).
So, for now we wait...one appointment is set for the first part of February, and his files have to be reviewed by a panel of doctors before the will set up his other appointment, but more than likely it will be around the same time. I feel very very blessed and humbled. It feels good to no longer be in a dead end.
6 comments:
Oh Happy Day. Perhaps the beginning to an end. Maybe? Hopefully? Our prayers are with you and our love.
Yea, YEa and YEA..........oh wait did I say YE yet!!!!
Oh Tiff,
I can't even imagine what a struggle you guys have had with this. EVERYTHING is different when you don't have good health. I 'm praying these doctors will have some answers for you.
I hate whatever is doing this to Bryan it's stupid! I really hope they find something, let me know when you need me por favor.
Can I use Bryan's letter for my talk on Sunday?? :)
I am so happy about the doctor situations. If anyone deserves this to work out, you guys do!
Take it from someone who knows pain and auto-immune diseases: bless any doctor who can give Bryan at least some hope. And bless you and your family for all you go through because of it! I love you guys!
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